{"id":4731,"date":"2018-02-05T00:02:23","date_gmt":"2018-02-04T23:02:23","guid":{"rendered":"http:\/\/kreftgenomikk.w.uib.no\/?p=4731"},"modified":"2018-02-26T15:30:20","modified_gmt":"2018-02-26T14:30:20","slug":"jus-og-lovverk","status":"publish","type":"post","link":"https:\/\/kreftgenomikk.w.uib.no\/no\/jus-og-lovverk\/","title":{"rendered":"Jus og lovverk"},"content":{"rendered":"

[et_pb_section admin_label=»Seksjon» fullwidth=»on» specialty=»off»][et_pb_fullwidth_post_title admin_label=»Fullbreddes innleggstittel» title=»on» meta=»off» author=»on» date=»on» categories=»on» comments=»on» featured_image=»on» featured_placement=»background» parallax_effect=»off» parallax_method=»on» text_orientation=»right» text_color=»light» text_background=»on» text_bg_color=»rgba(21,150,137,0.9)» module_bg_color=»rgba(255,255,255,0)» title_font=»|on|||» title_font_size=»35px» title_all_caps=»off» use_border_color=»off» border_color=»#ffffff» border_style=»solid» module_id=»header-image-and-text»]<\/p>\n

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[\/et_pb_fullwidth_post_title][\/et_pb_section][et_pb_section admin_label=»Seksjon» fullwidth=»off» specialty=»off»][et_pb_row admin_label=»Rad»][et_pb_column type=»2_3″][et_pb_text admin_label=»Tekst» background_layout=»light» text_orientation=»left» use_border_color=»off» border_color=»#ffffff» border_style=»solid»]<\/p>\n

De nye sekvenseringsteknologiene skaper samlinger av sv\u00e6rt sensitive data, som i prinsippet ikke lar seg fullstendig avidentifisere. Opplysningene inneholder en mengde informasjon av betydning for individets helse som vi bare i dag kan tolke en liten del av. Vi antar disse oplysningene vil v\u00e6re av stor betydning for personlige helsetjenester, og de er sv\u00e6rt interessant for epidemiologisk forskning. Dagens lovverk er ikke tilpasset denne nye utviklingen, og hvordan slike tester skal utf\u00f8res og opplysningene lagres og brukes m\u00e5 utrdes og besluttes. I dette prosjektet ser vi p\u00e5 disse sp\u00f8rsm\u00e5lene.<\/strong><\/p>\n

Several of these legal issues will be addressed in The Research Council of Norway funded project \u00abLegal Regulation of Information Processing Relating to Personalized Cancer Medicine\u00bb. The project is led by Professor Jan Helge Solbakk,<\/p>\n

\"Jan

Jan Helge Solbakk<\/p><\/div>\n

and is a collaboration between The Centre for Medical Ethics at The Medical Faculty, University of Oslo and The Norwegian Research Center for Computers and Law at The Faculty of Law, University of Oslo. A network of partners from The University of Bergen, The Norwegian University of Science and Technology, The University of Copenhagen, Boston University, and The University of Oxford is associated with the project. A PhD Candidate will write a legal dissertation on the subject, and a number of research seminars and open meetings will be organized in cooperation with The Norwegian Biotechnology Advisory Board.<\/p>\n

Issues relating to data privacy law and health law will be addressed in the project, and the legal research will be conducted in close collaboration with the medical research community.<\/p>\n

\n
For<\/span>\u00a0more<\/span>\u00a0information on the project<\/span>\u00a0see<\/span>\u00a0Heidi<\/span>\u00a0Beate<\/span>\u00a0Bentz<\/span>\u00a0article in Law&Data, 2015 (only in Norwegian)<\/a><\/span><\/div>\n<\/div>\n

[\/et_pb_text][\/et_pb_column][et_pb_column type=»1_3″][et_pb_sidebar admin_label=»Nyhetsarkiv og konferanser» orientation=»left» area=»primary» background_layout=»light» remove_border=»off»]<\/p>\n

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[\/et_pb_sidebar][\/et_pb_column][\/et_pb_row][\/et_pb_section]<\/p>","protected":false},"excerpt":{"rendered":"

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